For Members

Your tools, your community, your voice.

Membership gives you health tools built by patients for patients, a community that gets your journey, and a real voice in the research that shapes your care.

We're in our founding phase. Some tools are being built now. Others are planned. Founding members help shape all of it.

Center ring: useful tools

Built around your treatment journey.

Yours to use as soon as you join.

Treatment Tracker

Every regimen, every response, every change. Your complete treatment picture in one place, so you walk into appointments informed.

Phase 1

Lab Visualizer

M-protein levels, light chain ratios, blood counts: the trends matter as much as any single number. See them clearly, over time, with context.

Phase 1 View demo

Peer Matching

Connect with patients who share your diagnosis, treatment path, or stage. Real conversations with people who understand what you're going through.

Phase 1

Clinical Trial Finder

What trials are available, whether you qualify, and what participation involves. A guide for asking the right questions.

Phase 1

Research Library

Myeloma research translated into language that respects your intelligence. When studies use the cooperative's data, you see the results here first.

Phase 1

Myeloma Knowledge Companion

An AI assistant trained on published myeloma research and (with member approval) the cooperative's aggregated data. Answers questions in plain language. No external connections.

Phase 2 View demo

Second ring: data contribution

Contributing on your terms.

Data contribution is voluntary. It deepens your membership when you're ready. You control every aspect of how your data is shared.

FHIR Data Connector

Pull copies of your health records from your providers into a platform you own. Patient-directed data collection: you initiate the transfer. The cooperative never accesses health systems directly.

Phase 1

Dynamic Consent Dashboard

Choose, study by study, who accesses your data, for what purpose, and where it goes. Change your mind at any time. Your consent is a governed relationship, not a checkbox.

Phase 1 View demo

Data Relations Dashboard

See which studies accessed your data, for what purpose, what they found, and what value was created. The transparency tool that makes democratic data relations visible.

Phase 1

Survey Engine

Structured surveys for patient-reported outcomes, quality of life, and treatment experience. Patient-contributed data that fills the gaps EHR records miss.

Phase 1

Experience Narrative Tool

Share your story in your own words. Free-text experience summaries and qualitative data that give researchers context no structured form can capture.

Phase 2

Data Quality Score

See the completeness and quality of your contributed data. Understand what makes your records more useful to researchers, without gamification.

Phase 2

Democratic data relations

Your data creates relationships: with researchers who study it, with institutions that store it, with companies that build treatments from it. Banyan Grove exists so you can govern those relationships.

Third ring: governance

Your voice in how this works.

General Assembly Platform

Vote on board elections, bylaw amendments, research priorities, and benefit distribution. The cooperative's core democratic process, accessible to every member.

Phase 1 View demo

DERB Review Interface

The Data Ethics Review Board (elected by members) evaluates every research access request against your standards. Structured criteria, logged decisions, full transparency.

Phase 1

Research Proposal Viewer

See every pending and approved research proposal, with plain-language summaries. Know what studies are using the cooperative's data and why they matter.

Phase 1

Committee Workspace

Standing committees (research priorities, benefit distribution, technical standards) collaborate on the cooperative's direction. Open to any member who wants to contribute.

Phase 2

Patronage Dividend Tracker

See your accumulated patronage equity, cash distributions, and how allocation decisions are made. The economic return from the value your data helped create.

Phase 2

Governance participation is welcome at any level. Some members vote and that's it. Others serve on committees or run for the board. What matters is that the power is always yours.

Outer ring: shared research purpose

The reason the cooperative exists.

Here is how you ensure that your data is producing the research outcomes we all need.

Research Impact Feed

Updates on studies using the cooperative's data: publications, findings, clinical implications. In plain language that connects what you contributed to what was discovered.

Phase 2

Research Contribution Card

A personalized view: "Your data contributed to this study. Here's what they found." The concrete link between your contribution and research outcomes.

Phase 2

Patient Research Priorities Board

Members propose and vote on research questions the cooperative should prioritize. The research agenda reflects what patients need to know, not just what funders want studied.

Phase 2

Federation Toolkit

Templates, governance protocols, and platform components for adjacent disease communities forming their own cooperatives. One tree becomes a grove.

Phase 3

The plan

Where we're going and how we get there.

Banyan Grove is in its pre-formation phase. The cooperative doesn't exist as a legal entity yet. That's deliberate. We're building the research foundation, governance design, and tools before filing the paperwork.

Founding members join now. They help shape the governance, test the tools, and build the culture. When the cooperative formally incorporates, founding members are the first co-owners.

Phase 1

Founding

Months 0 to 12

  • Myeloma patients diagnosed at age 45 or younger.
  • 500 to 1,000 founding members.
  • Core tools and governance launched.
  • First General Assembly.
  • First Data Ethics Review Board elected.
  • The cooperative proves that patients will participate in democratic data governance.

Phase 2

Myeloma expansion

Months 12 to 24

  • Open to all myeloma patients.
  • 5,000 members.
  • First research partnerships using cooperative data.
  • First patronage dividend distributed.
  • The cooperative proves that democratic data relations produce research value.

Phase 3

Adjacent cancers

Months 24 to 36

  • Federation begins.
  • Adjacent blood cancer communities (AL amyloidosis, MDS) form their own cooperatives.
  • Open-source infrastructure and governance templates built by the myeloma community.

Phase 4

Federation

Months 36+

  • Multi-disease network.
  • Shared services, interoperable data standards, and collective bargaining for data licensing.
  • One tree becomes a grove.

As a member and co-owner, you'll have access to the cooperative's full business plan, strategy, and roadmap as they develop. Founding members shape what gets built, in what order, and for whom.

These tools are built by members, for members.

Founding members shape what gets built, in what order, and for whom. Your input starts the moment you join.

Become a founding member