For Members
Your tools, your community, your voice.
Membership gives you health tools built by patients for patients, a community that gets your journey, and a real voice in the research that shapes your care.
We're in our founding phase. Some tools are being built now. Others are planned. Founding members help shape all of it.
Health tools
Built around your treatment journey.
Treatment Tracker
Every regimen, every response, every change. In one place. Your complete treatment picture, in your hands, so you walk into appointments informed.
Compare your path with anonymized patterns from other members who've faced similar decisions. The tracker belongs to you. It's not a portal into a hospital system.
In developmentInterface preview coming soon
Lab Visualization
M-protein levels, light chain ratios, blood counts: the trends matter as much as any single number. See them clearly, over time, with context.
Better conversations with your care team start with better information.
In developmentInterface preview coming soon
Peer Matching
Connect with patients who share your diagnosis, treatment path, or stage. Real conversations with people who understand what you're going through, because they're going through it too.
You control your visibility and your connections. Matching is based on what you choose to share.
PlannedInterface preview coming soon
Education and research
Knowledge that works for you.
Research Library
Myeloma research translated into language that respects your intelligence. When studies use the collective's data, you see the results here first.
Coming soonClinical Trial Navigation
What trials are available, whether you qualify, and what participation involves. A guide for asking the right questions.
PlannedResearch Literacy
How to read a study abstract. What "statistically significant" actually means. Short modules that build your confidence.
PlannedYour data
Contributing on your terms.
Data contribution is voluntary. It deepens your membership when you're ready. Here's how it works.
Pull your records.
You have a legal right under HIPAA to copies of your health data. Patient-directed data collection: you pull records from your health systems into a platform you own. The cooperative never accesses health systems directly.
Set your preferences.
Dynamic consent is a governed relationship between you, your data, and the institutions that want to use it. Review each research proposal. Opt in, opt out, change your mind. Your consent evolves as you do.
See the results.
When research using the collective's data leads to findings, they come back to you in plain language. When it leads to better treatments, your data played a role. When it leads to a cure, you had a voice in how.
Democratic data relations
Your data creates relationships: with researchers who study it, with institutions that store it, with companies that build treatments from it. Banyan Grove exists so you can govern those relationships. The data relations dashboard makes it visible: who accessed your data, for what purpose, what they found, what value was created.
Governance
Your voice in how this works.
Every member has a vote. Governance goes deeper than annual elections. Here's how you participate.
Vote
Elect the board and the Data Ethics Review Board. Vote on major policy decisions. One member, one vote, regardless of when you joined or what you've contributed.
Review
See every research proposal before it's approved. The Data Ethics Review Board (elected by members) evaluates proposals against your standards. You can participate in that review.
Serve
Join governance committees. Run for the board. Participate in the General Assembly. The cooperative needs your expertise, not just your data.
Governance participation is welcome at any level. Some members vote and that's it. Others serve on committees or run for the board. What matters is that the power is always yours.
These tools are built by members, for members.
Founding members shape what gets built, in what order, and for whom. Your input starts the moment you join.
Become a founding member