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Dynamic Consent Dashboard

This is a preview of the cooperative's consent management tool, showing sample data for a fictional member. The production platform will be adapted from open-source infrastructure. Consent here means a governed relationship, one you can see, change, and revoke at any time.

Viewing consent for: Sample Member

Member Since January 2027

Data Contributed Treatment records, lab results, PROs, genomic data

Active Studies 3 using your data

Consent Status All categories enabled

Research types

Academic research

University-led studies, peer-reviewed research

Pharmaceutical research

Industry-sponsored studies, drug development

Clinical trials

Interventional studies registered with ClinicalTrials.gov

Government studies

NIH, CDC, and other public health research

Data types

Lab results

M-protein, light chains, CBC, metabolic panels

Treatment records

Regimens, responses, dosage adjustments, side effects

Genomic data

Cytogenetics, FISH results, gene expression profiles

Patient-reported outcomes

Quality of life surveys, symptom tracking, diary entries

Geographic scope

Where your de-identified data may be accessed by approved researchers.

5

Studies

4

Institutions

2

Active

$67,500

Generated for the cooperative

Data activity

Dana-Farber Cancer Institute accessed de-identified treatment records and lab results for the longitudinal outcomes study. 14 months remaining. Active
Fred Hutchinson Cancer Center accessed genomic data and treatment records for the exceptional response study. 28 months remaining. Active
Mayo Clinic completed the CAR-T quality of life study. Finding: significant improvement in quality of life scores at 12 months post-infusion. Completed
Memorial Sloan Kettering submitted a new data access request for the bispecific antibody effectiveness study. Pending DERB Review
UCSF approved for the maintenance therapy study. Enrollment starting this month. Approved

Revenue from data contributions

$67,500

$40,500 cooperative operations (60%)

$16,875 patronage dividend pool (25%)

$10,125 research reinvestment (15%)

Your data, your rules.

As a founding member, you'll set the consent framework that governs how every member's data is shared. Your preferences travel with your data, always.

Become a founding member